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I Can’t Resist A Good Challenge!

Ice Bucket Challenge Donations Top $100 Million in 30 Days compared to $2.8 million during the same time period last year (July 29 to August 29).

Mary looked at me like I was crazy when I told her that I wanted her to dump a bucket of icy water over my head.
“You might gasp and breathe in water and choke,” she warned. But after a few days of prodding she finally agreed to play her roll in the Ice Bucket Challenge. I was hoping that the ice cold water being poured over my head would cause me to jump out of my chair and run, like my Australian friend, Phil, but (SPOILER ALERT) unfortunately that didn’t happen.

Seventeen years ago, almost a year after being diagnosed with this horrible disease known as ALS, I was asked by MDA to participate in the local portion of the Labor Day Telethon. As one of the reporters was asking for donations to help cure ALS, he said, “It’s too late for Bill…” I know that sounds harsh, but it took everything Mary and I had not to burst out laughing on live TV.

Medically speaking, that insensitive reporter was right. I think that’s what made his statement so funny; there’s no need to state the obvious, especially when the dying man is sitting three feet away. Those diagnosed with ALS live an average of 3 to 5 years (I’ve always wondered why they don’t split the difference and just say 4 years). I doubt that the reporter or any of the doctors that diagnosed me would have thought I’d be typing a blog post with an eye-tracking computer 18 years later.

That’s the whole point, nobody really knows what the future holds. We hope and pray for a cure for so many horrible diseases, especially those that have devastated our life or the the life of someone we love. We may not know what the future holds, but we should do our best to leave the world better than we now find it. Yes, dumping a bucket of icy water over your head and/or giving a small donation to the ALS Association, might seem insignificant and even silly in the grand scheme of things, but I’m convinced that these people are trying to shape a better future for those suffering with ALS.

Thank you so much!