Lovely to find you typing interesting blog posts with an eye-tracking computer 18 years later you were diagnosed with that horrible disease which got at last some more attention, but at the same time is being misused to bring attention more on ‘popularity’ of unknown and political figures who want to come in the picture, wasting a lot of precious water, but not really contributing much money to advance the research for this illness.

Like any other person, healthy or unhealthy, nobody really knows what the future holds for him or those around him or her. There are many strange diseases which can bring people in distress and hoping for help whihc does not seem to come from the farmaceutical world because there are not enough patients with such an ilness to make their business profitable. The research would cost to much, so they do not find it worth to invest. It is a shame but the reality of life. Then you could say,where are the people who say they are Christian and ahve agape love? Why are not more of those and other people willing to help fund research for the so many ilnesses which need to be cured?
As you say we “hope and pray for a cure for so many horrible diseases, especially those that have devastated our life or the the life of someone we love.” Too many lives are having to face big questions and worries, where they sometimes do not know any advice.
At the other hand we often see by those people who are tortured by such unexplainable disease, that they have such a strength which is so much stronger than an ordinary folk. Often they also can inspire other folks and bring them to do exceptional works.

“We may not know what the future holds” you say, but about this some people in the world do have hopes and do believe we can have some pritty idea of what that future can entail. When we look at the very old books like the Book of Isaiah, we can get some picture. It is true, not many do believe in such unrealistic world. But people like you and many others are also some proof of the unreality and the miraculous wonders of this world.
It does not come cheap, it does not come easy. But for sure man got a message, a Word from Someone Who keeps to His Word. In the previous centuries (even millennia) He has shown His Works and proven to fulfil those promises He gave in and for the past and for the future. All His promises, except a few ones, became a reality, so why should we doubt that the last few ones shall not come true?
Though He does not give it for nothing? He requires also some work from us.

We should do our best to leave the world better than we now find it and each of us can contribute to it and has to respect everything which is around him or her.
We think it would be better, instead of dumping a bucket of icy water over your head to really give a donation to the ALS Association and other association which do their best to get funding , advice and treatment for patients with some ‘difficult’ diseases.
With teh action, Youtube video’s, media attention ALS may have come into the picture, but now the hands have to come out the sleeves and much work is to be done. Lets do it.

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