Over the last twenty-four years that I’ve had ALS, Mary and I have learned to take one day at a time. But this day, October 5th, is noteworthy because it happens to be my 60th birthday!
I was diagnosed just weeks after my 36th birthday. The prognosis was that I’d be dead before turning forty. My 40th birthday was a big deal. My 50th birthday was a bigger deal. But now I am 60!
“Do not worry about tomorrow; for tomorrow will care for itself. Each day has enough trouble of its own.” (Matthew 6:34).
Like the manna in the wilderness, God’s grace is only sufficient for today.
Taking this trial one day at a time, with God’s grace and the prayers and help of family and friends, we’ve been able to cope for over 8700 days. If you’re going through a difficult time right now, focus on today, and God will give you new strength tomorrow morning.
“The LORD’S lovingkindnesses indeed never cease, For His compassions never fail. They are new every morning; Great is Your faithfulness.” (Lamentations 3:22-23).
The picture below was taken in 1996, a month and a half after I was diagnosed.
That Christmas was bittersweet. We packed up our minivan and drove to Wisconsin and then Chicago to spend Christmas with my family. While staying with my sister’s family in Wisconsin, I took the first of probably a thousand painful falls.
I woke up before everyone else that Christmas morning and tried to sneak downstairs to get my video camera set up. Apparently, my legs were not fully awake and gave out at the top of the stairs. I rode my tailbone down the stairs and woke up everyone in the house. My tailbone hurt for months. I followed that with a few falls on icy driveways. Physically speaking, it went downhill from there. But, spiritually, I began to grow in faith.
“I consider that the sufferings of this present time are not worthy to be compared with the glory that is to be revealed to us.” (Romans 8:18).
Does the above verse include getting ALS at thirty-six, losing your career, becoming paralyzed, unable to eat, helpless and voiceless? A million times, YES!
As the Bible says, our lives are like a vapor that appears for a little while and then disappears. It’s eternity that matters. The more we focus on eternity, the smaller our problems seem.
“We do not lose heart, but though our outer man is decaying, yet our inner man is being renewed day by day. For momentary, light affliction is producing for us an eternal weight of glory far beyond all comparison, while we look not at the things which are seen, but at the things which are not seen; for the things which are seen are temporal, but the things which are not seen are eternal.” (2 Corinthians 4:16-18).
As you’ll see in the picture below, sixty years of life and twenty-four years with ALS has caused a lot of decay on my outer man:-)
I often wonder how anyone could have hope, joy, and peace, relying on the temporal things and the decaying “outer man”? More than that, why would anyone want to do this when Jesus suffered, died, and rose from the dead to offer you unshakable hope?
This is what I’m asking God for my 60th birthday gift – that just one person would read this post and make a commitment to follow Christ as I did thirty-seven years ago.
“For God so loved (your name here),that He gave His only begotten Son, that (your name here) believes in Him shall not perish, but have eternal life.” (John 3:16).
“Christianity asserts that every individual human being is going to live for ever, and this must be either true or false. Now there are a good many things which would not be worth bothering about if I were going to live only seventy years, but which I had better bother about very seriously if I am going to live for ever.” – C.S. Lewis
My siblings and their families planned to come down to celebrate my 60th birthday, but the pandemic put an end to their plans. I still had a wonderful birthday celebration with Mary’s mom, our girls, son-in-law, and grandkids.
To the family and friends who have already sent me birthday wishes and gifts – Thank You! Your messages are humbling. If wealth is measured by the love of family and friends, I am the wealthiest man on earth.
I haven’t posted in a while, so I thought I would share this short word of encouragement with my friends in the blogosphere.
For the last year or so, I’ve needed to wear my breathing mask 24/7. The last month or so has been more difficult. Even removing the mask to transfer in and out of my wheelchair left me gasping for air. (That’s obviously not the encouraging part:-)
But a strange thing happened to me a few days ago. Mary removed my breathing mask to get me out of bed around 6:30 that morning. After plopping me in the wheelchair, she then pulled the breathing machine over and started to put the mask on me. I stopped her. I was breathing just fine on my own. It felt so good to breathe without the assistance of a machine. I made it to 11:30 without my breathing mask – five hours!
I’m thankful for life’s victories, even the relatively small victories like breathing on my own for five hours. It’s the small victories that give us the confidence to believe for bigger victories. It’s the small victories that build our faith and hope. It’s the small victories that give us the strength to press on.
I’ve had ALS for 24 years, but I’m still believing God for small and BIG victories. I hope that you are, too.
He’s a big God!
“Thanks be to God, who gives us the victory through our Lord Jesus Christ.” (1 Corinthians 15:57).
My first blog post was eight years ago this week. My goal in starting this blog was to encourage and strengthen the hope of those going through difficult times. My goal remains the same. But, when I began this blog, it never occurred to me that I would be encouraged and have my hope strengthened by reading other blogs and the comments on my posts. I’ve never met any of my fellow bloggers, but many of you have become good friends, friends for life. (“Friends for life” is probably not much of a commitment for a guy on hospice :-). Seriously, I am thankful for your friendships.
The world has changed so much over the last eight years. In many ways, it’s gone from bad to worse.
The world is being shaken, but my hope in Christ remains unshakable.
Even amid trials, God still blesses His children. By far, the greatest blessing Mary and I have received since I started this blog is becoming grandparents. Our oldest daughter and our son-in-law have three adorable kids. Even though I’m not able to talk to them or play with them or even hug them, I am so thankful that God allowed me to stick around to experience becoming a grandfather.
Our oldest grandchild is a handsome and intelligent six-year-old boy named Jude. He is also a deep thinker. A few weeks ago, my daughter asked Jude to draw a picture describing his relationship with God. Below is the picture he drew:
It’s difficult for my old eyes to see, but there’s a chain securing Jude to God. I love the caption he wrote under the picture, “Nothing can break the chain.” He said the little picture in the upper left corner is “a mean bee that can’t get me because I’m protected.” When the pandemic began, my daughter and son-in-law helped Jude and his four-year-old sister Peyton memorize Psalm 91. On a recent backyard (social distancing) visit, they recited it for Mary and me. We think Psalm 91 is where he got the “protected” idea.
“Pops” is so proud of his three grandkids!
“Nothing can break the chain” is an excellent summary of one of my favorite passages in the Bible:
“Who will separate us from the love of Christ? Will tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? …But in all these things we overwhelmingly conquer through Him who loved us. For I am convinced that neither death, nor life, nor angels, nor principalities, nor things present, nor things to come, nor powers, nor height, nor depth, nor any other created thing, will be able to separate us from the love of God, which is in Christ Jesus our Lord.” (Romans 8:35-39).
Jesus is the “unbreakable chain” that connects us to God!
“I am the way, and the truth, and the life; no one comes to the Father but through Me.” (John 14:6).
What would your picture look like if you were to draw a picture of your relationship with God?
I have been sick for the last ten days or so. It was likely another upper respiratory infection or possibly pneumonia. It’s probably not COVID-19 because Mary’s had the house on lockdown since early March to protect her mom and me. She guards our home like it’s Fort Knox. She’s tough. Our daughter was in town last month and asked to stay with us, and Mary told her no. Mary said to her, “you haven’t been practicing social distancing or wearing a mask.” Thankfully, Mary did allow the repairman in last week when our air conditioner broke down.
Regardless of what I had, hospice isn’t in the business of diagnosing. Hospice is in the business of making the dying comfortable, and it’s a job that a lot of caring people do very well. They did write me a prescription for antibiotics, however. We are thankful for hospice.
I am feeling better. Thank you to all of you who pray for me.
I usually don’t watch a lot of television when I am feeling/breathing okay. I’m on my computer most days for ten or twelve hours. But whatever I had was making it so difficult to breathe sitting upright. I laid down and watched way too much news. Watching too much news leads to depression. I knew this, but I’m a glutton for punishment. Seeing footage of George Floyd having his life snuffed out, and the riots that followed was depressing. I love people, but I hate so much in this world. I want heaven so much more than this cruel world. I didn’t pray to die like I did last Thanksgiving when I was so sick, but I was tempted.
In my soul and spirit, I’m more there than here.
“Has this world been so kind to you that you should leave with regret? There are better things ahead than any we leave behind.” ― C.S. Lewis.
Have you ever prayed for the return of Jesus? If you’ve prayed the Lord’s Prayer, you’re praying for heaven to invade earth:
“Our Father who is in heaven,
Hallowed be Your name.
Your kingdom come,
Your will be done,
On earth as it is in heaven …”
As I’ve mentioned in other posts, I got the name of my blog from Hebrews 12:27:
“…all of creation will be shaken and removed, so that only unshakable things will remain.” (Hebrews 12:27).
It was almost twenty-four years ago that ALS shook our family. It was as if God turned us upside down and shook us until almost everything we were trusting in fell out. Everything but Jesus that is. He is the only Unshakable Hope we have.
The world is being shaken right now. The only constant is change, and most of these changes are not for the better. There will be so many “new normals” that the world we knew will be unrecognizable.
We can’t blame God for all of this suffering and turmoil. He does allow the horrible things we see to happen, but He allows it for good. In order to understand this, we have to see it from God’s eternal point of view. Heaven and hell are real, and we will all spend eternity in one or the other. Many of us put trust and hope in the things of this world, temporary things. With some of us, the only way we will turn to Christ is to be shown that these temporary things are not worthy of our trust and hope. This is the context for the Unshakable Hope verse: “…all of creation will be shaken and removed, so that only unshakable things will remain.” (Hebrews 12:27).
In chapter sixteen of the book of Revelation, the Apostle John was horrified by something he saw in the vision. He saw plagues and people with painful sores, such horrible suffering. What shocked John was these suffering people still refused to turn to Christ and be forgiven for their sins. Instead, they “blasphemed the name of God.”
How can I say that “God is good” when there is so much suffering and injustice in the world? Because He is not the “god of this world.” Satan is the god of this present world. He “has blinded the minds of the unbelieving so that they might not see the light of the gospel of the glory of Christ, who is the image of God.” (2 Corinthians 4:4).
One of the ways that the “god of this world” has “blinded the minds of the unbelieving” is by waving a bunch of shiny things in front of their eyes.
“For in hope we have been saved, but hope that is seen is not hope; for who hopes for what he already sees? But if we hope for what we do not see, with perseverance we wait eagerly for it.” (Romans 8:24-25).
I hope I will see you there.
The world has changed so much since I was diagnosed with ALS way back in 1996. Sitting here in my bedroom paralyzed for the last twenty years, I’ve mostly been an observer of these changes. In the opinion of this observer, some changes have been good, others have been bad.
I’m fascinated by the evolution of the Internet and Smartphone technology. In 1996, my cellphone was big, bulky, and only able to make calls. There was no such thing as Google, YouTube, Facebook, Instagram, or Twitter, and Amazon was a little start-up selling books. Only one percent of the world’s population had Internet access. Today, the overwhelming majority of the world has Internet access, and there are more than 3.5 billion Smartphones in use.
I don’t think we can classify the Internet and smartphones as good or bad. They are merely tools. It’s what we do with them that becomes good or bad.
This COVID-19 pandemic introduced us to Social Distancing. As someone who’s been grounded to my room for the last two decades, I’m an old pro when it comes to social distancing. I am very thankful for this tool known as the World Wide Web. Even before starting this blog eight years ago, I was communicating with people all over the world.
I began connecting with people overseas ten years ago when I became an Online Missionary with Global Media Outreach. GMO was founded by a former Apple executive named Walt Wilson. With Steve Jobs, Walt was on the team that developed the Macintosh computers. The ministry shares the Good News through ads on social media in over 200 countries. To do this, they’re using over a hundred different domains in 50+ languages. They also use SEO (Search Engine Optimization), so one of their sites comes up first when people search using words like “God,” “Jesus,” “Bible,” or “Christianity.”
When someone clicks one of the ads or opens one of the sites, they are presented with the Good News. Afterward, they’re asked if they’d like to want to commit to follow Christ or learn more. If they click yes, they are connected to one of the thousands of Online Missionaries speaking their language. They might be connected to a paralyzed guy in Texas who can’t speak at all and is typing them with an eye-tracking computer. (If you want to see where GMO is making connections in real-time, click here).
Today, most of the GMO contacts are via cell phones, but when I started ten years ago, it was primarily computers. One of my first contacts was a woman in Sudan who walked three hours twice a week to use a computer at an Internet cafe. She was so eager to learn more and grateful for GMO and the easy to understand discipleship resources they provide.
Another contact was a young man in a Muslim country who committed to follow Christ after reading the Gospel message on a GMO site. His father and uncle were highly respected leaders in their town, and they were furious when he told them he was a Christian. His father threatened to stop paying for his college, thinking this would make him recant. When he refused, his father and uncle threatened to kill him. The last time I communicated with him, he was hiding out at the home of a moderate Muslim friend. He was already sharing the Gospel with his friend and with others.
Many of the people who haven’t heard the Gospel live in Iran, Saudi Arabia, China, North Korea, and other countries that missionaries don’t have access to. GMO can provide them with discipleship materials and digital Bibles.
“Go therefore and make disciples of all the nations…” (Matthew 28:19).
People have asked me why some Christians feel the need to evangelize. The short answer is – because Jesus told us to. That should be enough, but it’s also because those who have believed the Good News want to tell others. Last week, a friend emailed us and told us that Kroger has toilet paper. We were happy to hear that news. Regardless of what we believe, most of us want to pass along good news. Forgiveness of sins and the offer of eternal life with Christ is the best news in the history of the world! How could we not tell others?
(Jesus said) “…this gospel of the kingdom will be preached in the whole world as a testimony to all nations, and then the end will come.” (Matthew 24:14).
In Matthew 24, Jesus was telling His disciples the signs of the end times. It’s such an amazing prophecy when you put in the context of that time. He said “this gospel” thirty-five or forty years before Matthew wrote his Gospel. Jesus told this small group of disciples that the Good News would be proclaimed to the “whole world,” and to “all nations.” At the time he spoke those words, it’s estimated that the world’s population was around 300 million. Today there are 7 billion people on earth. With automobiles, planes, and especially the Internet, our generation is the first with the ability to fulfill this prophecy. And we will!
Before the COVID-19 pandemic, GMO was sharing the Gospel with an average of 350,000 a day. Since the pandemic began, they’ve been averaging 500,000. But they can handle two million per day. The only thing keeping GMO from reaching more people with the Good News is support to purchase more ads. If you can help with even a small gift to GMO, click here.
“Go therefore and make disciples of all the nations…” (Matthew 28:19).