The public is panicking over this Coronavirus. Sporting events have been canceled, churches are vacant, and grocery shelves are all but empty. Many people in America are in fear of contracting this virus, so they’re hunkering down at home.
Having overcome the fear of death, contracting the virus is way down on the list of my concerns. However, I can relate to the fear of going out in public.
My name is Bill, and I am agoraphobic.
Agoraphobia: Extreme or irrational fear of entering open or crowded places, of leaving one’s own home, or of being in places from which escape is difficult.
“Why are you afraid, you men of little faith?” (Matthew 8:26).
In other posts, I’ve told you that I call our bedroom “the cave.” The eye-tracking computer I use works best in dimly lit rooms, so I keep the lights off. The blinds on the door to the back patio are open, but that’s usually the only light in the room. It’s a climate-controlled and otherwise comfortable cave, but it’s still a cave. I am very thankful for creature comforts. As of this month, I’ve spent twenty years in this cave.
“We can confidently say, ‘The Lord is my helper; I will not fear…'” (Hebrews 13:6).
I once thought agoraphobia was something people claimed to have because they wanted to stay home and binge-watch Netflix. Not really, but I just couldn’t imagine why an able-bodied person would have a fear of public spaces. I do understand, all too well, the fear of public spaces for the physically and mentally disabled, especially those with autism like my nephew. I get sensory overload.
“The LORD is my light and my salvation; Whom shall I fear?” (Psalm 27:1).
The last twenty years in my cave staring at a computer screen for twelve hours a day has taken a toll on my eyes. My vision has become increasingly blurry over the last few years. I knew that I needed to go to the eye doctor, but that meant public spaces. And not just any public space. The eye doctor we’ve gone to for years now works at the Walmart Vision Center. His former practice was in a small strip center with a handicap parking space fifteen feet from the door. That was okay, but a busy Walmart is a scary place for someone with agoraphobia.
“When I am afraid, I will trust in You. In God, whose word I praise, in God I trust; I will not be afraid.” (Psalm 56:3-4).
It’s so ironic that I’ve developed a fear of public spaces because at the time I was diagnosed with ALS twenty-three years ago, I was a Regional Sales Manager in the grocery business. I spent many of my days visiting grocery stores, including Walmart stores, throughout Texas, and the other five states in my region.
“I sought the Lord, and He heard me, and delivered me from all my fears.” (Psalm 34:4).
My last trip to a public space was two years ago when I had to have surgery to remove a growth on the lower eyelid of my left eye. Ouch! The surgeon had what he removed tested, and it turned out to be basil cell carcinoma. I had to go back for him to remove more. Now I have a similar bump on the lower eyelid of my right eye. My trips in public are so exciting.
“Why are you in despair, O my soul? And why have you become disturbed within me? Hope in God, for I shall again praise Him For the help of His presence.” (Psalm 42:5).
My fear of public spaces is not just a product of my imagination. I have had some horrible things happen when we’ve ventured out in the past. I’ve mentioned some of these in other posts. Like the time our van’s wheelchair lift decided to break when I was three feet off the ground – in the pouring rain! I am thankful for the first responders that rescued me at that time and a few other times. We had the wheelchair lift repaired and it works great, but I’m still a little nervous about using it.
After a year of Mary prodding me, I finally relented and agreed to see the eye doctor (no pun intended). I still cringed when she told me that she made an appointment. In the days leading up to the appointment, I became nervous just thinking about going. Because I’m so high maintenance, Sharlene, the part-time caregiver I’ve had for almost thirteen years, went with us to the appointment last Friday.
Everything went fine. None of the things I feared materialized. Isn’t that the way it is with most of our fears?
Fear is such a powerful force. It’s a bully that robs us of sleep and puts stress on virtually every other aspect of our lives – if we permit it to do so.
We can’t allow fear to control our lives. If we want to replace fear with hope, we have to be careful, especially in these dark days, of what we see and hear. The news and zombie apocalypse shows will not give you hope. Instead:
“Fix your thoughts on what is true and honorable and right. Think about things that are pure and lovely and admirable. Think about things that are excellent and worthy of praise. Keep putting into practice all you learned from me and heard from me and saw me doing, and the God of peace will be with you.” (Philippians 4:8-9).
We must also surround ourselves with hope-filled people. Mary and I have had our hope strengthened, and our fears diminished by hopeful followers of Christ, including our blogging friends.
We are living in difficult times. If you’re looking for hope, Unshakable Hope, apart from Christ, I don’t have any advice for you. If you are not a follower of Christ, I am hoping and praying that you will commit to following Him today.
“Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving, let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.” (Philippians 4:6-7).
Happy New Year!
I believe 2020 will be a great year.
Regular readers of my blog know that I’ve had ALS for twenty-three years. I’ve been on hospice for the last fifteen months, and in that time, I’ve had three close encounters with death. I don’t mean to make light of this, but I think you could say that I have one foot in the grave, and the other is on a banana peel. Knowing this, and reading that I’ve declared that 2020 is going to be a great year, you might be questioning the state of my mental health. I get it, but please hear me out.
I’ll admit that my mental health is not as good as it once was. I recently watched a movie for twenty minutes before realizing I’d seen it before. I don’t know if this is related to the ALS or just getting old. Regardless, I have total recall when it comes to the suffering that Mary and I have endured throughout this protracted trial. If the new year holds more suffering for me, bring it on! I am putting suffering on notice – you will not steal my peace, joy, and hope! If suffering results in my death this year, suffering still loses:
“For I consider that the sufferings of this present time are not worthy to be compared with the glory that is to be revealed to us.” (Romans 8:18).
I’ve made plans and goals for the new year – I’m pressing on!
“Whatever things were gain to me (my health, career, my ability to breathe on my own, eat and speak, and walk…), those things I have counted as loss for the sake of Christ. More than that, I count all things to be loss in view of the surpassing value of knowing Christ Jesus my Lord, for whom I have suffered the loss of all things, and count them but rubbish so that I may gain Christ…” (Philippians 3:7-8).
I feel sorry for those who have all of their hopes invested in the things of this world. I hope and pray that my simple posts might draw them to Christ, and the Unshakable Hope that comes along with making a commitment to follow Him. That would be a great bonus for the time and effort I spend pecking out these posts on my eye-tracking computer. However, I feel called to encourage those going through difficult times. I think these are the people who can relate to my posts. I’m rededicating myself to this calling for 2020.
It’s kind of funny, but, in a sense, I feel that my body, which was perfectly healthy for the first thirty-six years of my life, has since been betraying me. I realize, of course, this isn’t the case, but I allow myself to believe this to motivate me. It’s payback time now – I’m going to punish this body by using every bit of the strength and energy left in it! The common sports metaphor for this is “leaving it all on the field.” I was on the swim team in high school, so in my case, it would be leaving it all in the pool. The Apostle Paul liked to use sports metaphors. In 1st Corinthians chapter 9, he compares the Christian life to running a race. Being very familiar with Greece, he was likely referring to the Olympics. He tells us to make our body “our slave” and “run in such a way that you may win.” Notice that in the following passage, Paul uses the phrase “press on” two times:
“Not that I have already obtained it or have already become perfect, but I press on so that I may lay hold of that for which also I was laid hold of by Christ Jesus. Brethren, I do not regard myself as having laid hold of it yet; but one thing I do: forgetting what lies behind and reaching forward to what lies ahead, I press on toward the goal for the prize of the upward call of God in Christ Jesus.” (Philippians 3:12-14).
I hope you’ll join me in “forgetting what lies behind” “press on” to what lies ahead.
Happy New Year!
Most people don’t think of breathing as a luxury, after all, even the poorest among us can breathe. They wouldn’t be among us otherwise.
Luxury: a condition of abundance or great ease and comfort.
After almost twenty-three years with ALS, which greatly affects my ability to breathe, I believe the above definition of luxury perfectly fits being able to breathe in ease and comfort. But maybe only those who’ve had breathing problems view breathing as a luxury. I hope this simple post will give readers a new appreciation for the ability to just breathe. I think this is important because, if we learn not to take breathing for granted, we’ll begin to view material luxuries for what they really are – just stuff!
Regardless of location, status, race, religion, politics, or anything else that divides people, taking a breath is the first thing we do when entering this world and the last thing we’ll do when exiting this world.
Breathing is a great equalizer.
The ability to breathe was also the first gift that God gave to mankind:
“And the LORD God formed a man’s body from the dust of the ground and breathed into it the breath of life. And the man became a living person.” (Genesis 2:7).
Even though I don’t have the ability to use or the money to spend on the latest gadgets, I am fascinated by technology. I am literally surrounded by incredible machines that add to my quality of life. My wheelchair reclines and is very comfortable. It even has headlights and taillights for cruising around at night. This wheelchair cost as much as a new car. It was donated to the Muscular Dystrophy Association (MDA) after the original owner died from ALS. I am borrowing it from them.
In front of me, attached to the wheelchair with a bar, is my eye-tracking computer. This special computer enables me to communicate, type this post, and do so much more.
To the right of my wheelchair is a little pump mounted on an I.V. pole. This pump is connected to my feeding tube, and for twelve hours a day, its slowly pumping a lab concocted formula into my stomach.
Finally, to my left, is a ventilator that breathes for me through a little breathing mask that’s plugged into my nose.
Now that I think about it, I might be more machine than human.
Because ALS also weakens the muscles needed to breathe, I’ve been relying on a breathing machine when I sleep for the last twenty years. Increasingly over the last few years, I’ve also had to use this ventilator during the daytime. When fighting for every breath, it’s such a relief when Mary puts the breathing mask on me. I am finally able to relax. That’s a luxury.
A few weeks ago, I was watching a television show called “American Pickers.” This is a show about two men who travel America in a van looking for old items to buy and resell for a profit. In the episode I was watching, these two men were in Florida trying to buy old luxury cars from a wealthy man who lived in a mansion near the ocean.
This elderly man owned several once-beautiful and very expensive cars, but because he lived near the ocean, these cars were just rusting away in the salty air. When I was a boy, while playing with my Matchbox Cars, I dreamed about one day owning some of the very cars that this man was letting sit in his garage and rust away. That little boy in me and the adult me were in total agreement; they both had the same thought – WHAT A WASTE!
The “Pickers” made offers to buy some of the cars, but the man refused to let go of his rusting luxuries.
“Do not store up for yourselves treasures on earth, where moth and rust destroy, and where thieves break in and steal. “But store up for yourselves treasures in heaven, where neither moth nor rust destroys, and where thieves do not break in or steal; for where your treasure is, there your heart will be also.” (Matthew 6:19-21)
In the years following my diagnoses with ALS, I’ve learned to place a higher value on my many blessings. Apart from the rare visits from that little boy inside of me, my definitions of treasures and luxuries are not the same as they once were.
Breathing is a great luxury.
No matter how bad things look to you, there is hope for a better tomorrow if you’re breathing today.
Thanks for dropping by my blog.
It’s hard for me to believe, but July 7th marked the seven-year anniversary of my Unshakable Hope blog. And, most surprising of all, after nearly twenty-three years with ALS, I’m still alive!
For Christians, the barren wilderness is a metaphor for life’s trials. I like this picture because rainbows, a sign of God’s promises, can be found even in the wilderness times of life. I also like that this wilderness path is wheelchair accessible.
I started this blog to share the hope I’ve found in Christ, with the goal of strengthening the faith and hope of other Christians going through trials. While in the midst of my own trial, this is one of the things that I believe God has called me to do. So many followers of Christ are going through difficult times. If anyone became a Christian thinking they would be exempt from trials, they will be sorely disappointed. Christians and non-Christians go through trials, the difference is that Christians can have peace and hope when life gets hard:
“…I have told you all this so that you may have peace in me. Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world.” (John 16:33).
Back in 2012, when I started blogging, I didn’t think about making new friends through my blog or reading posts on other blogs that would strengthen my hope and faith. This has been a great bonus. I now believe this is probably half the reason that God was prompting me to start my blog.
The name of my blog comes from a verse in the book of Hebrews. Seven years ago this month, as I was reading the Bible on my computer, just like I’ve done since losing my ability to flip the pages of a book thirteen years earlier, I scrolled down to Hebrews chapter eleven. This is one of my favorite chapters in the New Testament. It’s a chapter about holding onto faith while going through hardships. So many of God’s people have endured suffering by looking to Him for strength. This chapter lists several examples of true faith. These are men and women who refused to compromise their faith, even when doing so would have ended or lessened the trials they were facing. In short, Hebrews chapters eleven and twelve are about becoming eternally–minded.
The end of chapter twelve sums this up; telling followers of Christ to stay focused on our eternal hope. The temporary and material things can, and eventually will be destroyed. Created things, including the body we’re living in, will decay. In my case, ALS has turbocharged this process.
“…the removing of those things which can be shaken, as of created things, so that those things which cannot be shaken may remain.” (Hebrews 12:27)
After reading the Hebrews 12:27, I went online and bought the domain Unshakablehope.com and started this blog.
Unfortunately, trials don’t occur in a vacuum. The different parts of our lives are so interconnected that a trial of our health, like my being diagnosed with ALS at the age of thirty-six, affects virtually every other area of our lives. When I was diagnosed, it was as if an earthquake occurred; the career that God had blessed me with, and I had worked so hard to build, was removed. Because of this, our finances were greatly shaken. On and on it goes.
I won’t spend the time or waste the effort to list the “created” and temporal things that were removed or shaken in our life. Either you know firsthand or have witnessed the shock-waves and aftershocks that come from the epicenter of a horrible diagnosis, a job loss, a divorce, the death of a loved one, or another of life’s many earthquakes.
So many areas of our lives, including our health, can be shaken. But, if we look to God during our trials, our hope in Christ is one of the things that cannot be shaken.
Our hope in Christ is an Unshakable Hope!
“My soul, wait in silence for God only, For my hope is from Him. He only is my rock and my salvation, My stronghold; I shall not be shaken.” (Psalm 62:5-6)
Please don’t put your hope in temporary and created things, not even another person, because everything we see with our natural eyes will eventually disappoint us.
“Don’t let happiness depend on something you might lose.” C.S. Lewis
Have you ever had an itch that you couldn’t reach to scratch?
This is yet another frustrating aspect of having ALS; being paralyzed by this cruel disease, I cannot scratch my own itches. Over the twenty-two years of my having ALS, I’ve become pretty good at blocking out everyday itching from skin irritations.
The most irritating itches are those caused by insects!
When the weather is nice, I enjoy kicking back in my wheelchair on the patio and listening to audiobooks. This would be much more relaxing if the insects would leave me alone. They seem to know that I am powerless to swat them and take full advantage of this. Several times, mosquitoes have landed right on my forearm and have taken all of the blood they could handle. Their buzzing sounds a lot like laughter as they fly away, leaving me with an itchy bite I can’t scratch.
But worse than the bold mosquitoes are I demonic house flies. On more than a few occasions, these disgusting flies have conducted coordinated attacks on me. They’d fly into my nostrils and ears and land on my lips. It’s as if Beelzebub, the ancient pagan “lord of flies,” sent them to torment me. I’m only half joking. Sometimes I really do wonder what goes on “behind the scenes.”
Two weeks ago, I had a horrible itch on my left side that, no matter how hard I tried, I couldn’t overcome the urge to have it scratched. It was a burning itch as if I had been scalded by hot liquid. Mary lifted my shirt to investigate and discovered that I had bright red welts on the side of my waist. It looked like I really had been scalded by hot liquid. These red itchy welts quickly spread to my back.
It turned out to be shingles. The hospice doctor got me started right away on antibiotics and a cream for the welts. It was thankfully a minor case, there was not much pain, just ten days of itching.
Another kind of itching:
Just before he was beheaded under the Roman Emperor Nero, the last recorded words of the Apostle Paul were a warning about itching. Spending years chained in dungeons, with fleas, lice, and likely irritable skin conditions, I’m sure that Paul knew a lot about itching of the body. But he wouldn’t waste his last words on earth recommending essential oils for skin conditions (I get those recommendations from my daughter, Leah).
Paul issued a warning about the worst of all itches – spiritual itches:
“…the time of my departure has come. I have fought the good fight, I have finished the course, I have kept the faith…” “The time will come when they will not endure sound doctrine; but after their own lusts shall they heap to themselves teachers, having itching ears; And they shall turn away their ears from the truth, and shall be turned unto fables.” (2 Timothy 4:6-7 & 3-4).
At the age of twenty-three, I made a commitment to follow Christ. I wasn’t attending church at this time. In truth, I was still cynical about the whole“organized religion” thing. I don’t recommend this, but for the first three or four months, I didn’t attend church. However, I read the Bible every day. Some days I’d read the Bible for several hours. Before the first time I attended church, I made a commitment to God that if any preacher contradicted what I had been reading in the Bible, I’d stick with what the Bible taught and never attend that church again.
It’s been thirty-six years since I made that commitment and Mary and I have been members of two churches. Thankfully, we’ve never had any serious disagreements with what’s been preached by the pastors. The same can’t be said about some of the messages I’ve heard on television, the radio, and YouTube.
I know that there have been false teachers for all of the two thousand years of Christianity, but it’s never been as bad as it is now.“The time” that Paul warned us about just before being executed is here; we’re living in times of great deception.
Please read the Bible and walk away from anyone who contradicts it. It’s a matter of life and death –eternal life and death!
“You never know how much you really believe anything until its truth or falsehood becomes a matter of life and death to you.”― C.S. Lewis
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