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Hang In There!

The Saturday before Easter Mary took me on a long trip. We went to visit our older daughter and our son-in-law, and our three adorable grandchildren. Their home is around seventy miles away from our house.

I know that seventy miles from home doesn’t seem like a long trip to most of you, but anything further than our mailbox is outside of this hermit’s comfort zone. I was somewhat hesitant about getting in the van after our last trip to look at a new neighborhood that is being built nearby didn’t turn out so well.

Unlike the newer smooth-driving minivans with wheelchair ramps, we have a big not-so-smooth-driving Ford van with a hydraulic wheelchair lift. My wheelchair weighs about three hundred and fifty pounds, and I weigh about a hundred and sixty-five pounds. So the lift has to raise and lower over five hundred pounds. Using the controls, Mary lowers the lift so my wheelchair can back onto it. She then raises me to the level of the van where I can then back in. Our van and the wheelchair lift are twenty-one years old, but both work well. Usually.

It was difficult for me to look around the new neighborhood because, like every other muscle in my body, my neck muscles are extremely weak, so with every turn of the van, my head swung back and forth. To people following us, I probably looked like a life-sized bobblehead figure. But, other than having a neck ache when we returned home from our brief excursion, everything went fine. Mary just had to get me out of the van and get me back into the house. If it were only that easy.

After raising the lift halfway, I saw a panicked look on her face. “The lift is stuck!” After she pushed the up and down buttons over and over, I concluded the obvious – I’d be spending the rest of my life stuck in the van. We taught our girls never to call 911 unless it was a real emergency. This situation wasn’t like a heart attack or a car accident, but I knew that Mary and her eighty-six-year-old mother were not going to lift me and my wheelchair out of the van. Mary called 911 and explained the situation, telling them not to hurry, but…

Within minutes I heard sirens in the distance, and they were getting louder and louder. As I sat there hoping that God would somehow keep our neighbors from hearing the sirens and seeing the flashing lights, a big firetruck parked in the street and an ambulance pulled in the driveway. Just ten minutes after Mary made that “no need hurry” call to 911, six men and a woman were standing in front of me scratching their heads.

I have an old manual wheelchair in our garage, and they were able to lift me out of my wheelchair and plop me in that wheelchair. They were then able to lift my heavy wheelchair out of the van and transfer me back. We are so thankful for first responders, I just wish they didn’t have to use sirens and flashing lights. I don’t know for sure, but I think some of my neighbors might have gotten a glimpse of me for the first time. Mary got the lift repaired the following day, and it works great now.

This was actually the second time we had to call 911 because of this wheelchair lift malfunctioning. The first time was a scary situation. About five years before this incident, on our wedding anniversary, Mary and I decided we would pretend that we were a normal couple and go to see a movie. Everything went fine until we exited the theater and saw the pouring rain. Thankfully, our van was parked only about a hundred feet from the doors of the theater. Handicap parking is great. I turned the speed of my wheelchair all the way up, and we made a mad dash to the van. Mary quickly opened the doors to the van and grabbed an umbrella to hold over us as she operated the lift. She’s the best!

Within two minutes I was on the lift being raised up to the level of the van where I would quickly back in, and we’d be out of the rain and on our way home. It didn’t quite work out that way. We heard a popping noise when she was raising me up. “That can’t be good,” I thought.

The lift went all the way up to the level of the van, but there was a two-inch gap between the lift and the floor of the van. This has never happened before, the lift is usually flush with the floor of the van. But, my wheelchair is great, I can roll over high thresholds and other minor obstacles like toys that our grandchildren have left lying around. I figured that getting over a two-inch gap would be no problem.

However, I failed to realize that the lift and the wheels of my wheelchair being wet would make jumping this gap really difficult. I still had the speed of my wheelchair on its highest setting, but couldn’t get over the gap and into the van. I tried again and again. I would inch my way to the front of the lift then quickly pull the joystick back. But when the small back wheels hit the gap, the big wheels would start spinning.

I kept trying. The rain increased. Umbrellas don’t work very well when the wind is blowing. We were soaked. “A few more tries and we’ll go back into the theater’s lobby and wait for the rain to stop,” I told myself. I tried again, and the strangest thing happened, something I couldn’t even imagine. Apparently, the engineers who designed this wheelchair lift didn’t envision this happening either.

When I pulled back on the joystick, the small back wheels got stuck in the gap, and the big wheels began spinning just as in previous times. But, instead of the wheelchair going over the gap and into the van, the floor of the lift shot out from under me, sailing over the parking space next to us and landing against a curb. The boy inside of me thought, “THAT WAS AWESOME!” Then, that pesky rational voice in my head quickly took over, wondering: “If the floor of the wheelchair lift just went skidding across the parking lot, what was holding my wheelchair and me three feet up in the air?”

I glanced over at Mary who looked like she was in shock: “Bill, don’t move.” She obviously forgot that I was paralyzed. Trying to remain calm, she explained that only the outside edges of the tires of my wheelchair were resting on the narrow angle iron that used to support the floor of the lift. If my wheels had not been perfectly centered on the lift, the wheelchair and its occupant would have fallen to one side or the other. It turns out that the only thing holding the floor of the lift to the narrow supports was a strip of double-sided tape.

After examining my precarious state, Mary determined that she could not lower the lift because the small back wheels were stuck in the gap and lowering the lift would dump me out onto the parking lot and the three hundred and the fifty-pound wheelchair would likely land on top of me. She called 911, and some big firemen showed up, crawled over the back seat, and pulled me into the van.

I am so thankful for things like wheelchairs, wheelchair lifts, and especially for this computer that allows someone like me to communicate and type blog posts. But I’ve learned the hard way not to put faith in technology or any man-made things.

Was God holding me and my wheelchair up when the floor of the lift shot out from under me?

“There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.” – Albert Einstein

It was so strange to be sitting in my wheelchair three feet up in the air with seemingly nothing under me. But, because the outside edges of the two big tires were resting on the narrow angle iron, there is a natural explanation for my wheelchair being suspended in midair. Therefore, I can’t claim that it was a miracle that the wheelchair didn’t fall when the floor shot out from under me.

However, Mary and I believe that this was a miracle because God has been “holding us up” throughout the twenty-two years of my having ALS. Just when we need assistance, He sends family or friends or, in this case, firemen, to help us.

We know that the life of faith can often feel like we’re suspended in midair. There are times that followers of Christ can feel like God has left us hanging. This is where our faith, trust, and hope in Christ are tested and strengthened.

Hang in there. God has not forgotten you.

“Do not fear, for I am with you; Do not anxiously look about you, for I am your God. I will strengthen you, surely I will help you, Surely I will uphold you with My righteous right hand.” (Isaiah 41:10)

Someone Polluted Our Gene Pool :-)

By Bill

Because we can trace our mother’s and father’s families back to Ireland, my nine siblings and I have always assumed that we were 100% Irish, but…

About a year ago a few of my siblings decided to get their DNA tested. I don’t know how accurate this DNA testing is, but the tests showed that we are only 95% Irish, give or take 1%. Somehow, maybe hundreds of years ago, our gene pool was corrupted, or, likely enhanced, by 5%. Apparently, the relationship between the Irish and the English wasn’t always strained; in fact, it seems that the relationship was quite good for two of my ancestors.

It’s kind of fun to think about the possible scenarios of how and when our ancestor’s blood became mixed with another family’s DNA. I told my brother that it was probably a golfer from London who came over to Ireland to play around. Or, maybe my great, great, great grandmother traveled to England and got a job as a chambermaid for a wealthy family and ended up marrying a member of the household staff.

Regardless of how our ancestors got together, these two are probably to blame for my rebellious nature, and I’m pretty sure this is where I get my sense of adventure from. Living with ALS for 21+ years is quite an adventure, but I wouldn’t recommend it.

As I’ve mentioned in past blog posts, I have been an Online Missionary with Global Media Outreach since 2010. Like here on my blog, I have met and become friends with Christians all over the world; Africa, Europe, China, Iran… I don’t like to admit that I’m geographically-challenged, but I’ve even connected with people from tiny remote islands that I had to Google to find the location of.

As I am writing this, I’m thinking about two men that I disciple and communicate with regularly. These two men have become friends of mine. Their names are Claude, from Burundi (that’s in East Africa for my fellow geographically-challenged readers), and Biruk, from Ethiopia. Biruk is living in Japan right now finishing up a Masters program. He’s hoping and praying to get accepted into a Ph.D. program in Australia for the next school year.


I’ve never asked, but I’m guessing that, like most native Africans, Claude and Biruk have dark skin, probably several shades darker than my pasty white skin. I’ve never asked about their race because it really doesn’t matter to me. The strange thing is that both of these men address me as “Brother Bill.” They are both relatively new followers of Christ and genuinely believe that we are brothers, spiritually speaking. And, I believe that we are brothers too. Why? Because the New Testament tells us that followers of Christ are brothers and sisters in the eyes of God:

“There was a crowd around Jesus, and someone said, “Your mother and your brothers and sisters are outside, asking for you.” Jesus replied, “Who is my mother? Who are my brothers?” Then he looked at those around him and said, “These are my mother and brothers. Anyone who does God’s will is my brother and sister and mother.” (Mark 3:31-35)

Claude, Biruk and all true followers of Christ are “strangers and exiles on the earth. For those who say such things make it clear that they are seeking a country of their own…they desire a better country, that is, a heavenly one. Therefore God is not ashamed to be called their God; for He has prepared a city for them.” (Hebrews 11;13-16)

I am so looking forward to living in “a country” with no racism, no human trafficking, no murder, no rape, no child abuse or any other form of evil.

No, I am not delusional, I know this place exists, and I hope that one day you’ll be there with me.


“…you are all children of God through faith in Christ Jesus…There is no longer Jew or Gentile, slave or free, male or female. For you are all Christians–you are one in Christ Jesus.” (Galatians 3:26-29)

In a very real sense, Jesus has become the DNA of those who follow Him.

Living Like You’re Dead

The title of this blog might seem like an oxymoron, but I hope to convince you otherwise.

I have come close to death several times even before ALS entered my life 21 years ago. With each brush with death, the more I am able to identify with death and eternity and live my life accordingly.

You might think that viewing my life as having one foot in the grave and the other on a banana peel would be a depressing way to live, but I’ve discovered just the opposite; it’s a very liberating way to live, at least, from a Christian point of view. I think it’s also the viewpoint that Christ intended us to have.

In the days leading up to Christmas every year, Mary and I always watch “It’s a Wonderful Life” and the 1951 version (the best version) of “A Christmas Carol.” After watching these movies this last Christmas, I was thinking about why I love these two holiday classics. I concluded that it was because, in each of these movies, the central character learns about what’s really important in life after seeing themselves as dead.

Virtually every morning when I wake up, I remind myself that this might be my last day on earth. I am a long way from perfecting this, but I try to let this reality govern every aspect of my life. Before ALS, even though I was a Christian and was supposed to be “eternally minded,” I’m ashamed to admit that I did not always allow my own mortality to influence my daily life. Even back then in 1996 when I was diagnosed, before smartphones, Facebook and so many other distractions and time-wasters, it was so easy to lose focus on the realities of life.

The Apostle Paul said, “I die daily.” (1 Corinthians 15:31). It was miraculous that Paul lived to be an old man. He had come close to death so many times. Even after suffering through numerous trials and brushes with death, Paul lived his life with joy, peace, hope, contentment and so many other spiritual and emotional strengths we all long for. Yet, he seemed to go through a daily exercise of visualizing himself nailed to a cross:


“I have been crucified with Christ and I no longer live, but Christ lives in me. The life I now live in the body, I live by faith in the Son of God, who loved me and gave himself for me.” (Galatians 2:20).

Many well-meaning Christians have empathized with me by saying things like “ALS is a heavy cross (for you) to bear…” I’m thankful for everyone who empathizes with my having to go through this horrible trial that has cost me my career, my health and so much more. But this trial is not “my cross to bear.” I took up my cross the 35 years ago when I made a commitment to follow Christ.

“If anyone wishes to come after Me, he must deny himself, and take up his cross daily and follow Me. “For whoever wishes to save his life will lose it, but whoever loses his life for My sake, he is the one who will save it. “For what is a man profited if he gains the whole world, and loses or forfeits his own soul?” (Luke 9:23-25)

In today’s narcissistic “selfie” culture, “Denying yourself” is a tough message to sell. Christianity, true Christianity, has always been a counter-cultural belief system. But in a society where just about anything goes, those who make a commitment to follow Christ, to live like they’re dead, are today’s ultimate rebels.

Buying into this living like you’re dead life will cost you everything you’re holding onto, but the benefits are joy, peace and unshakable hope; hope that will carry you through trials, temptation, and tribulation.

“Set your mind on the things above, not on the things that are on earth. For you have died and your life is hidden with Christ in God.” (Colossians 3:2-3)

Thanks for taking the time to read,
Bill
picture credit: https://jaytharding.com/

A Great Inheritance

Wouldn’t it be great to inherit millions of dollars from a distant relative that you’ve never even met?
Unfortunately, this rarely happens, but I did get an email from Nigeria…


When I was fifteen years old, a great uncle, who I was named after, passed away and left me a gold-plated pocket watch with his/my name engraved on the back and a thousand dollars. I had never met this man, but he instantly became my favorite uncle. I was determined to be responsible with my newfound fortune so I opened a savings account and deposited the check. A few months later I turned 16, got my drivers license, and crashed into a tree in my sister’s car. I had to say goodbye to my great inheritance.

I thought a lot about material wealth while watching horrible images on TV of hurricane’s Harvey and Irma destroying homes and businesses in Texas, Florida, and other states. And, as I’m typing this blog post, I’m glancing at the TV and seeing more horrible images caused by Hurricane Maria in Puerto Rico, and a powerful earthquake in Mexico City. It’s heartbreaking.

We live in Southeast Texas, and we’ve seen the destructive power of these storms. So many people we know were flooded out of their homes from Hurricane Harvey. Thankfully, we were not among them.

A week after Hurricane Harvey destroyed so many homes and businesses in our area, my visiting nurse, Rebecca, came to our home. She visits me every month to confirm that I am still alive. Rebecca is a Christian and a single mother of three young boys. She told us that she and her boys had to flee their rental home as the floodwaters began to creep in. There was no time to move furniture and other valued possessions upstairs. The muddy water quickly engulfed the whole first floor, ruining everything it swallowed up.

Nine years ago, Hurricane Ike swept through Southeast Texas. Even though we live 80+ miles from the coast, we still had hurricane-strength winds at our home. The strong winds left our area without electricity and, because we have a water well, without running water, for seven days. We and most of our neighbors have generators because we’re prone to natural disasters and occasional power outages. My friend, and then next-door neighbor, Les, set up a little window air conditioner in our bedroom and kept our generator running 24/7.

Mary and I were sound asleep in our cool bedroom, while poor Les was yelling for us to call 911; their house was on fire! By the time we made it outside, their beautiful home was fully engulfed in flames; there was little the firefighters could do. We later learned that the cause of the fire was a faulty extension cord running from his generator to a fan in his home. Something so small, took so much. Thankfully, Les’s wife and kids were staying with relatives so everyone, except the family dog, escaped the flames.


How quickly our earthly treasures can be taken from us.

“Do not store up for yourselves treasures on earth, where moth and rust (earthquakes, floods and fire) destroy, and where thieves break in and steal. “But store up for yourselves treasures in heaven, where neither moth nor rust destroys, and where thieves do not break in or steal; for where your treasure is, there your heart will be also.” (Matthew 6:19-21)

Where is your heart today?

Jesus gave the Apostle Paul, the disciples, and all followers of Christ our marching orders:

“…open their eyes so that they may turn from darkness to light and from the dominion of Satan to God, that they may receive forgiveness of sins and an inheritance among those who have been sanctified by faith in Me.” (Acts 26:18)     

Jesus wants all people to trust and hope in the inheritance that He suffered, died, and was resurrected to secure for everyone who “calls on His name.” This is the Great Inheritance, it’s an eternal inheritance.

We are living in uncertain times, our wealth, and, as I learned 21 years ago, our health, and even our very lives, can be taken from us In a moment.

Blessed be the God and Father of our Lord Jesus Christ, who according to His great mercy has caused us to be born again to a living hope through the resurrection of Jesus Christ from the dead, to obtain an inheritance which is imperishable and undefiled and will not fade away, reserved in heaven for you…” (1 Peter 1:3-5)

The Bible tells us that everything we see can, and will, be shaken. Only by putting our faith in Christ will we have Unshakable Hope.

The Man In The Mirror

Can you imagine going a whole month without seeing yourself in a mirror?

If you’re a follower of my blog, you know that I’ve had ALS for almost 21 years, and that I’m totally paralyzed and home-bound. In addition to an excellent nurse visiting me once a month to confirm that I’m still alive, a very nice lady also comes to our home once a month to cut my hair. She came the other day to cut my hair so Mary maneuvered my wheelchair into the bathroom in front of the dreaded mirror (mirrors don’t lie). “Who is that guy with gray hair and big bags under his eyes?” I asked myself.

You see, unless I ask Mary or my caregiver to place me in front of the mirror, which, for obvious reasons, I rarely do, haircut time is the only time I have to face this 56 year old man in a wheelchair (a really disturbing experience).

In some ways, my journey with ALS almost seems like a bad dream, a really long bad dream, even more so when I don’t see myself in the mirror for long periods of time.

Except for the constant reminders of the wheelchair I’m sitting on and the eye-tracking (Look Ma, no hands) computer I’m using, I could close my eyes and almost imagine that I am still the healthy 36 year old man that I was before being diagnosed with this stinkin’ disease.

Then I look in the mirror…

“…we do not lose heart, but though our outer man is decaying, yet our inner man is being renewed day by day. For momentary, light affliction is producing for us an eternal weight of glory far beyond all comparison, while we look not at the things which are seen, but at the things which are not seen; for the things which are seen are temporal, but the things which are not seen are eternal.” (2 Corinthians 4:16-18)

Can you imagine someone picking out the clothes you wear every day – for 20 years? On occasion, when we’re having company, Mary will bring out three shirts and ask me which one I’d like to wear. But, other than those rare occasions, Mary or Sharlene, my caregiver and good friend for the last ten years, pick out the clothes I’m going to wear without any input from me.

As I was writing this post, I thought about an old black & white movie I’ve seen, titled “The Picture of Dorian Gray.” It’s about a narcissistic man, Dorian Gray, that, while examining his just-completed portrait, basically makes a pact with the devil that his physical appearance would remain just as it is in the portrait.

Over the period of several years, all of his friends age naturally, but Dorians appearance remains the same as it was the day that he collaborated with evil. However, his now-hidden portrait reflects his soul, and this portrait becomes more hideous with every evil act he commits.

http://www.imdb.com/title/tt0037988/

If there was such a thing as a mirror that reflected our soul, what would your reflection look like? (I have probably asked myself this question a thousand times since making a commitment to follow Christ some 35 years ago).

When looking into a mirror, we can see our physical imperfections, but for those who call themselves Christians, the Bible is the mirror of our soul. If we’re open to making changes to our spiritual imperfections (if we have “eyes to see and ears to hear”) the Bible will transform us.

But prove yourselves doers of the word, and not merely hearers who delude themselves. For if anyone is a hearer of the word and not a doer, he is like a man who looks at his natural face in a mirror; for once he has looked at himself and gone away, he has immediately forgotten what kind of person he was. But one who looks intently at the perfect law, the law of liberty, and abides by it, not having become a forgetful hearer but an effectual doer, this man will be blessed in what he does.”(James1:22-25)

“But we all, with unveiled face, beholding as in a mirror the glory of the Lord, are being transformed into the same image from glory to glory, just as from the Lord, the Spirit.” (2 Corinthians 3:18)

Are you being transformed by the Mirror of your Soul?

If not, I hope and pray you’ll begin doing so today.